Friedreich’s Ataxia Research Alliance (FARA) Ireland is a non-profit, non-governmental, Irish organisation representing people with Friedreich’s Ataxia (FA). Through the vision and dedication of a group of concerned parents FARA Ireland was established in 2011. It is a voluntary organisation with charitable status, Charity Number CHY 19673.

The founders were spurred on by the success and determination on FARA, based in the USA (www.curefa.org) and FARA Australasia ( www.fara.org.au ) to contribute to funding research into Friedreich’s Ataxia from Ireland.

FARA Ireland aims to help find a cure for FA by:

1) Raising funds for research,

2) Developing strong connections with the global research community and

3) Advocacy work – currently focused on getting the drug, omaveloxolone, approved and funded in Ireland for those with FA. This drug was approved for use in FA in USA on 28 February 2023.